I would like to ask if anyone has suggestions on how to tone down a high startle response Everything seems to startle me? That was an un-welcomed visit. Thanks for letting me vent!! The doctor may need to rule out any other possible causes or underlying conditions. . Amyotrophic lateral sclerosis is a progressive neurodegenerative disease where the obstruction of communication between the brain and the skeletal are obstructed because of the degeneration of motor neurons in the spinal cord and the brain. The fasciculations have intensified to his whole body most of the time. A look at lip twitching, a complaint causing involuntary movement. In addition to all the supplements, I have also had success with chiropractic adjustments (weekly) that target legs/cramps and neck. Most of my twitching is concentrated in my right arm and hand. I have been to 2 neurologist over the past year. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. "In fact, twitching in the tongue muscle is almost always abnormal.". It was only after surgery did I start to see fasciculations in both legs. Prayers for all. "This is very common and these fasciculations usually go unnoticed, but in some cases, people do feel the muscle twitch.". That's all we can do and hope our symptoms go away or improve. After some time, a person may also experience pain in the affected muscle. I am also 40. When the body needs them to move, they can do so instantaneously. However, if I walk barefoot over a grain of sand on the floor at night, I react from the pain, but I wouldnt call it a startle reflex. An unexpected benefit for me. There have been many great posts and sharing of experiences on this topic and others. However, it will stop when the person starts using the muscle. I do not take any medication to treat it. Precise cause is unknown; however, autoimmune action, presence of cancer and genetic predisposition are considered to be triggering factors. Muscle twitches may also be due to trauma and I take homeopathic nerve calm tabs and that seems to calm them. That is interesting that your husband only has fasciculations/twitching and no other symptoms of ALS. This condition can be relieved by reducing stress, quitting coffee, smoking and other stimulants, trying relaxing techniques like meditation, taking dietary supplements and drugs like anti-anxiety or anti-epileptic medication. He said clinical and emg were normal. Not completely gone but livable. The difference from my 1st year to now (9 yrs.) I'm new on here but did you ever find out what the cause your twitching was? The spasms are very rapid and only last for a few seconds. Fast forwarding two years, the twitches are pretty rare at this point. I have tried mexiletine (and was part of the clinical trial for that) but it makes me dizzy and I stopped taking it. Learn, Medical News Today has strict sourcing guidelines and draws only from peer-reviewed studies, academic research institutions, and medical journals and associations. Since then the twitching continues but the painful cramps have stopped. I should also mention that I am prescribed 150 mg Wellbutrin and birth control daily, and have also been taking painkillers as needed for the past few weeks due to surgery. The common, less serious causes of muscle twitching include: Twitching of the eyelids, calves and thumbs is common and harmless which are probably caused by trivial life-style related reasons. There are many things that can cause muscle twitching, including fatigue, anxiety, or even a pinched nerve in the spine. Muscle cramps, too, are very common, and can be caused by such things as over-exertion or even dehydration. Just watch any basketball game: it seems theres always somebody on the floor dealing with a significant leg cramp. My symptoms started with left leg muscle weakness and numbness in December 2018. The last reason for muscle twitching all over body is Isaac's syndrome. These treatments are palliative and will not retard progression. Im currently experimenting with a range of different supplements too. My question is do fasciculations typically come first and then weakness/atrophy? Two uncommon conditions called benign fasciculation syndrome and cramp fasciculation syndrome cause frequent muscle twitches and, in the latter case, Symptoms of BFS also appear to be a cause of stress and anxiety for people who have the condition. All rights reserved. If a person is experiencing persistent muscle twitches and has not yet been diagnosed, they should speak with a doctor. ALS sets us up to move less. Im interested in what supplements you are taking. At 300mg I experienced side effects I didnt like. This is a genetic condition resulting in atrophy of the voluntary muscles of arms and legs. Those hurt. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. 1) I too have had luck with topical CBD cream/oil. Ive slowly lost a great deal but I can still walk slowly with a rollator or crutches, take care of my personal needs and dressing,prepare simple meals, drive and enjoy many activities with friends. Im blessed with a SaintAngel (partner) who massages my uprisings (twitching quads/vastus/calves) providing AMAZING relief. I cant state medically that it gives pain relief, but it is undeniably soothing and its supplemental botanicals are very pleasant. Treatment includes anticonvulsants like phenytoin and carbamazepine to manage muscle ache, rigidity and spasms. If you haven't gotten the shots yet, get them. I seem to get a little electricity (or maybe they were twitches and I just didnt know how to describe them) before that body part stops working. Muscle twitching all over body and muscle rigidity are also common symptoms. physical exhaustion and lack of sleep. I have twitching in my arms and legs. Besides, performing flexibility exercises is recommended. He also said als doesnt normally start with all over fasciculations. ? After an EMG in September I was given a presumptive diagnosis of ALS. It is possible to have a clean or normal emg and then develop a abnormal emg at a later time. They really, REALLY bug me. Other than the fasciculations he hasnt experienced Any weakness and its been a year since they started. Fatigue or localized muscle strain. I immediately googled to search for sterching excercises. They all wanted to call it neuropathy, until a sharp doc at Stanford expressed concern about MND ALS Dx followed 2 months later. My feet do involuntary jerks a few times each night as Im trying to get to sleep. as soon as I resume the magnesium pills , they disappear, or get very mild. 2) Massage. However, many people find they can manage their symptoms with lifestyle changes. Why can we not get any answers . Im still trying to determine the optimal temperature and duration for the above; if anyone has insights, please advise. Resistance bands are great for this, making it easier from a variety positions. And I've had muscle pain, stuff muscles that comes and goes. Is the ketogenic diet right for autoimmune conditions? All information is useful and warrants further individual review and research prior to subscribing. low blood sugar levels. stress. The zings, fizzles and ever-so-slight thumps of a twitching muscle feel weird, kind of unsettling. Do you think he is just in the early stages of ALS? Thats not what Ive read. Treatment focuses on managing symptoms and reducing stress levels to help people maintain a high standard of living. For the past 1.5 years I have also been experiencing a whole cluster of symptoms: extreme dry/red eyes, pins and needles sensation all over my body- including tingling on face, skin lesions, afew mouth ulcers and ear pain. John I can relate with having a high startle response (I think medically it is have high tone in reflexes) watching movies with surprise explosions in them, Im one-inch up off the chair! But the spasms are intense and only occur at night. The hand cramps bother me the most because my fingers just freeze up, and I cant use my hand for a bit. I am improving over time, but I am extremely chemically sensitive--I have to avoid fragrances. ), I was curious how I could self-trigger HSF-1 (heat shock) response. They will test a persons tendon reflexes and ask about their medical history, personal background, and stress levels. So I had both issues at the concurrently (I think). Ugh. Messages. Treatment depends on the cause of the condition. Unfortunately, they are an unneeded expense for pALS and only line the pockets of the supplement companies. Our muscles want to cramp, contract & spazz given the slightest opportunity; getting on the floor, keeping them lengthened & modestly exercised (recumbent cycle) seems to calm them down. Yes. Im 55 and already have severe health anxiety and depression this has put me over the edge. Major symptoms are muscle weakness, tremors and spasms followed by difficulty in breathing, eating and limb weakness. Fast forward to Sept 2019, I saw the neurologist at USC Keck Medical and I suspect she knew that this would be symptomatic of ALS. Have you found a diagnosis yet? The right side was high functioning. Hope you feel better! Hello, I am interested in this topic of fasciculations as that is what alerted the Dr to have my husband tested for ALS. If I just eat protein I feel like I am being shook apart. It is a common symptom in alot of swallowing problems so it was the cause of mine. * I do believe over-exertion, on the other hand, has an opposite, detrimental effect. Are you able to please share? Doctors may choose a symptomatic approach to treat this condition. I mentioned it to my general practice doctor and she paid no attention to what I described to her. WebCommunities > Neurology > Muscle twitching all over body & numbness . Treatment revolves around restoring muscles and delaying the advancement of the condition. I hope you and our forum members find it helpful and a balance to this discussion. I find that the less you dwell on those kind of minor symptoms the better. Your muscles are simply receiving incomplete signals from the brain commanding them to move. They cannot test for it until it has manifested itself in your system, so asking for a rabies test is not going to help anything. Twitching is the result of the sudden contraction or release of a muscle. I take liquid Magnesium Malate & Glycinate. Havent had twitching for a long time. Muscle twitching is a very slight, often repetitive triggering of the muscle, but it doesn't bring about a complete muscle contraction. If you're experiencing new muscle twitching as well as other issues in the same muscle, Dr. Ondo recommends discussing your symptoms with your doctor. My grandfather died of ALS in his mid 60s. First he had them on and off mostly on his left side starting in January of 2019 (just turned 50) which he attributed to mild arthritis in his shoulder and his hip replacement he had done 2 years prior. Benign fasciculations may be challenging to treat. But also lost most of the use of my right hand and developed speech issues prior to the twitching starting. 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